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May 2nd, 2019 – The Silent Genomes Project: First Nations Perspectives on Precision Diagnosis of Rare Diseases in British Columbia

May 2nd, 2019 – The Silent Genomes Project: First Nations Perspectives on Precision Diagnosis of Rare Diseases in British Columbia

Globally, Indigenous Peoples experience unequal access to genomics-guided health care—a health inequity the World Health Organization calls the “genomic divide.” The Silent Genomes Project aims to address this divide by reducing access barriers to diagnosis of genetic disease in Indigenous children. Understanding First Nations’ needs, preferences, and values is a necessary antecedent to this goal. […]

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